Key Skills

Job Description

Do you enjoy figuring out how things connect? Whether it's a gap in a dataset, a process that doesn't quite make sense, or a pattern others haven't noticed yet, you enjoy asking questions and getting to the root of the problem. At EBMT, we're looking for a Data Steward who combines technical know-how with a naturally inquisitive mindset. Someone who enjoys working with data, but is equally interested in understanding what it means, how it fits into the bigger picture, and how it can be improved. Because this role isn't just about maintaining data. It's about helping ensure that researchers and clinicians can rely on it to generate knowledge, drive innovation, and ultimately improve patients' lives. The EBMT is a leading non-profit medical and scientific organisation, advancing cellular therapies and blood and marrow transplantation through collaboration, research and real-world data. As part of our Clinical Research and Registry Department, you'll join a team driving the evolution of one of the world's largest patient registries, helping to enhance data quality, support innovation and improve patient outcomes worldwide. Our mission Save and improve the lives of patients with blood-related disorders. Your mission As a Data Steward, you will be responsible for the quality assurance and harmonisation of Registry data, ensuring alignment with OMOP CDM standards and EBMT initiatives. Support Study Units and hospitals in data collection initiatives for EBMT Registry data and studies. Responsibilities and Tasks Data Stewardship: Design, implement and test new Data Collection Forms (DCFs), including versioning and harmonisation across form releases. Mapping of data collection forms to the OMOP CDM or other data model(s) Providing input and designing data quality reports Conducting data quality campaigns on a regular basis and per request. Support query managers to effectively perform data quality activities in the Registry Documenting data policies and data standards, contribute to Standard Operating Procedures (SOPs) Review and provide feedback on study data collection initiatives Project Coordination and Communication: Coordinate various data management related project activities within the Registry unit and other stakeholders Contribute to the development of the Registry infrastructure and functionality Collaborate and effectively communicate with internal and external stakeholders. Training Carry out and assist with Data Management related training to EBMT staff and members Develop written and visual training materials Requirements: Fluent in English, excellent oral and written skills. Degree in the field of biomedical sciences, bioinformatics, data science or similar Experience as data manager, data engineer, data analyst, data steward or related Experience with relational databases Python, SQL and/or R experience. Experience with GitHub. Familiarised with good coding practices Familiarised with GDPR and/or GCP Good communication skills. Ability to communicate effectively with people in a multicultural / multilingual environment. Analytical/logical thinking, strong problem-solving skills. Detail-oriented, thorough. Proactive, able to adapt to a fast paced and ever changing work environment. Team player. Desirable Experience with clinical standards (e.g. OMOP, CDISC) and vocabularies (e.g. SNOMED CT, MedDRA) Familiarised with clinical and medical data (ideally haematology, immunology and/or HSC transplant programs and new cell therapies) Experience with working in the non-profit sector What we offer Join a non-profit society with a meaningful mission, where your work makes a real difference in advancing healthcare. Collaborate with a multicultural, international team in a supportive and inclusive environment. Enjoy a hybrid working model: 2 days per week at our Leiden office and 3 days working remotely. Full-time role (36h/week) with flexible hours (start between 8–10 am). Temporary contract for six months, with the prospect of a permanent contract. Holiday pro rata (12.5 working days, 6 months). Salary: 3,220 (scale 8.0) to 3,714 (scale 8.3) gross/month (depending on previous experience) plus 13th month payment and 8% holiday allowance. Start date: October/November Extra benefits: Commuting allowance for commuting on office days Support in training and professional development A pension arrangement with the National Civil ABP Pension Fund At EBMT we believe that a diverse team is a key part of building a great organisation, we would like to listen and learn from you. All qualified candidates will be considered for our positions without regard to race, color, religion, gender, sexual orientation, national origin, disability or age. Please note that we do not sponsor visas. CVs must be submitted in English only. Commercial acquisition attempts in response to this advert are not appreciated.

Core Responsibilities

The Data Steward is responsible for the quality assurance and harmonization of Registry data, ensuring alignment with OMOP CDM standards. They will design and test data collection forms, conduct quality campaigns, and support hospitals in data collection initiatives.

Requirements

Candidates must have a degree in biomedical sciences, bioinformatics, or data science, with experience in data management and proficiency in Python, SQL, or R. Fluency in English and familiarity with GDPR/GCP and relational databases are required.

Benefits

• 13th month payment
• 8% holiday allowance
• Commuting allowance
• Training and professional development support
• Pension arrangement with National Civil ABP Pension Fund